SCAR-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs.
The SCAR-Q is for children aged 8 years and older and adults with surgical, traumatic and burns scars. The SCAR-Q has 3 scales that measure scar Appearance, Scar Symptoms and Psychosocial Impact.
Basic Scale Structure
The SCAR-Q conceptual framework was developed from information about scars provided by 52 children and 192 adults who took part in interviews to develop BREAST-Q, FACE-Q, BODY-Q and CLEFT-Q. The analysis led to the identification of 3 key domains for which scales were developed: scar appearance, scar symptoms and psychosocial impact. SCAR-Q was refined with feedback from 25 adults and 20 children as well as 27 clinical experts. The field-test study included an international sample of 731 patients from 4 countries.
This scale measures scar appearance in terms of a range of characteristics of a scar, including the size, colour, contour, visibility and how it looks in scenarios (e.g., up close).
This scale measures how bothered someone is by scar symptoms such as the scar feeling itchy, painful, tight, etc.
This scale measures the psychosocial impact of having a scar, including feeling self-conscious, unhappy or embarrassed about the scar or covering up the scar.
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Leveraging PRO Data to Inform Oncology Clinical Decision Making. Stefan Cano, Modus Outcomes’ CSO and co-developer of the Q-Portfolio is not sitting still! @DrStefanCano co-authored a paper describing the development of a Head & Neck Cancer Module for the FACE-Q.
@ElizahoyleOwen @eurordis If you're interested in more #PROMS @ISOQOL provide a great Introduction to PROMS course @ElizahoyleOwen Also @anneklassen @McMasterU & @Q_Portfolio doing some great work on #PROMS in the field of plastic surgery - including many patients with rare diseases
@ElizahoyleOwen @shirley_bracken @eurordis @ISOQOL @anneklassen @McMasterU @Q_Portfolio Agree. ISOQOL is THE meeting for anyone interesting in using, developing, and validating patient-centered measures. The annual scientific meeting will be in San Diego in mid October. I’ve connected with fantastic colleagues all over the world thru ISOQOL.