ACNE-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs.
ACNE-Q is for adolescents and adults with acne or acne scarring. The ACNE-Q has 7 scales that measure appearance (of facial, back and chest acne, skin and acne scars), acne-related symptoms and appearance-related distress.
Advancing Knowledge &
Improving Health Outcomes
ACNE-Q was field-tested with 256 patients in 2 countries.
Can be used in international clinical trials to test different treatments for acne and acne scars.
Could be used to benchmark outcomes in quality improvement initiatives
Designed using a modern psychometric approach to facilitate use in patient care.
Basic Scale Structure
The ACNE-Q conceptual framework was developed from 21 patient interviews. The analysis led to the identification of 3 top-level domains: Appearance Concerns, Acne Symptoms, and Psychosocial Concerns. The item pool developed from the qualitative dataset was used to design 7 scales.
The ACNE-Q includes 5 appearane scales that measure facial, back and chest acne, acne scars and facial skin.
The ACNE-Q includes a short scale that measures acne-specific symptoms.
The ACNE-Q includes a scale that measures how often someone behaves or feels a certain way about how they look.
Select a section to see list of relevant publications
ACNE-Q DEVELOPMENT AND VALIDATION PUBLICATIONS
Klassen AF, Lipner S, O’Malley et al. Development of a New Patient-Reported Outcome Measure to Evaluate Treatments for Acne and Acne Scarring: The ACNE-Q. Submitted for publication
Longmire NM, Breitkopf T, Piplani B, Pusic AL, O’Malley M, Lipner S, Wong Riff K, Klassen AF. ACNE-Q is a New Patient Reported Outcome Instrument that Measures Appearance-Related Concerns. Qual Life Res 2017;26:136.
Leveraging PRO Data to Inform Oncology Clinical Decision Making. Stefan Cano, Modus Outcomes’ CSO and co-developer of the Q-Portfolio is not sitting still! @DrStefanCano co-authored a paper describing the development of a Head & Neck Cancer Module for the FACE-Q.
@ElizahoyleOwen @eurordis If you're interested in more #PROMS @ISOQOL provide a great Introduction to PROMS course @ElizahoyleOwen Also @anneklassen @McMasterU & @Q_Portfolio doing some great work on #PROMS in the field of plastic surgery - including many patients with rare diseases
@ElizahoyleOwen @shirley_bracken @eurordis @ISOQOL @anneklassen @McMasterU @Q_Portfolio Agree. ISOQOL is THE meeting for anyone interesting in using, developing, and validating patient-centered measures. The annual scientific meeting will be in San Diego in mid October. I’ve connected with fantastic colleagues all over the world thru ISOQOL.