Basic Scale Structure
The LYMPH-Q | Upper Extremity was developed for use with arm lymphedema. Concepts important to women were elicited during qualitative interviews with 15 women with arm lymphedema following treatment for breast cancer.
Development and Validation
Analysis of the qualitative data led to the development of an item pool and 7 scales that measure the following concepts: arm function, arm symptoms, arm appearance, life impact, psychological, arm sleeve and information. These scales were refined through 16 cognitive interviews with women, and input from an international scale of 12 multi-disciplinary experts. The LYMPH-Q was translated into Danish and the scales were field-tested in the USA and Denmark. The field-test study included 3222 women with arm lymphedema following breast cancer. The analysis provided evidence of reliability and validity of each scale. Since each scale is scored separately, clinicians and researchers are able to administer the subset of scales relevant to their situation.