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LYMPH-Q | UPPER EXTREMITY

CUSTOMIZABLE FOR DIFFERENT NEEDS

The LYMPH-Q | Upper Extremity was developed for use with arm lymphedema.

Concepts important to women were elicited during qualitative interviews with 15 women with arm lymphedema following treatment for breast cancer. These scales were refined through 16 cognitive interviews with women, and input from an international scale of 12 multi-disciplinary experts.

Advancing Knowledge &
Improving Health Outcomes

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Scale Structure

The LYMPH-Q | Upper Extremity was developed for use with arm lymphedema. Concepts important to women were elicited during qualitative interviews with 15 women with arm lymphedema following treatment for breast cancer.

Development and Validation

Analysis of the qualitative data led to the development of an item pool and 7 scales that measure the following concepts: arm function, arm symptoms, arm appearance, life impact, psychological, arm sleeve and information. These scales were refined through 16 cognitive interviews with women, and input from an international scale of 12 multi-disciplinary experts. The LYMPH-Q was translated into Danish and the scales were field-tested in the USA and Denmark. The field-test study included 3222 women with arm lymphedema following breast cancer. The analysis provided evidence of reliability and validity of each scale. Since each scale is scored separately, clinicians and researchers are able to administer the subset of scales relevant to their situation.

SYMPTOMS

This 15-item scale measures how the arm feels. Items ask about pain, numbness, pressure, feeling tired, etc.

FUNCTION

This 12-item scale measures arm function. Items ask about putting on clothes, holding a phone, using hand and fingers, reaching, etc.

APPEARANCE

This 10-item scale measures the appearance of the arm with lymphedema. Items ask about how the arm looks in photos, in sleeveless and long-sleeved shirts, overall size of the arm, how clothes fit the arm, etc.

PSYCHOLOGICAL

This 12-item scale measures how the patient feels. Items ask how often they felt hopeless, depressed, fed-up, unattractive, frustrated, etc.

INFORMATION

This 9-item scale measures the patient’s experience of care in terms of satisfaction with the information they received from their health care providers about arm lymphedema, such as how lymphedema is treated, how to avoid infections, how to monitor, how lymphedema can feel, etc.

ARM SLEEVE

This 10-item scale measures satisfaction with the use of an arm sleeve for lymphedema. Items ask how the arm sleeve fit, how helpful it was in reducing swelling, how easy it was to put on, how comfortable it was to wear, etc.

LYMPH-Q FRAMEWORK

Our Team

Dr Anne Klassen

Dr Anne Klassen

McMaster University, Canada
Dr Andrea Pusic

Dr Andrea Pusic

Brigham and Women’s Hospital, USA

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