cleft-q-colour

FREE TO NON-PROFIT USERS
Easily available to clinicians and researchers

Portrait of a baby girl who has a cleft palate looking over the shoulder of her mother

SHORT INDEPENDENTLY FUNCTIONING SCALES
Choice of scales customizable for different needs

cleft-baby

MEASURING WHAT MATTERS TO PATIENTS
Appearance, quality of life, adverse effects

Baby looking at the camera

USED WIDELY AROUND THE WORLD
Available in multiple languages

Asian preschooler holding a book. Please view these along with other

STRONG PSYCHOMETRIC PERFORMANCE
Rigorously developed and sensitive to clinical change

CUSTOMIZABLE FOR DIFFERENT NEEDS

CLEFT-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs.

The CLEFT-Q is for anyone with cleft lip and/or palate aged 8 to 29 years. The CLEFT-Q has an eating/drinking checklist and 12 scales that measure 3 overarching domains of Facial Appearance, Facial Function, and Quality of Life.

Advancing Knowledge &
Improving Health Outcomes

Research

CLEFT-Q was field-tested with 2434 patients with cleft lip and/or palate at 30 hospitals in 12 countries.

Industry

Can be used in international clinical trials of craniofacial treatments.

Patient Care

Designed using a modern psychometric approach to facilitate use in patient care.

Basic Scale Structure

The CLEFT-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs. The CLEFT-Q measures 3 overarching domains: Appearance, Facial Function, and Quality of Life. The conceptual framework shown below was developed from qualitative interviews with 138 patients from 6 countries, 69 cognitive interviews, and careful examination of the research literature and engagement with 44 clinical experts. The CLEFT-Q was then field-tested in an international sample of 2434 patients in 12 countries.

APPEARANCE

The CLEFT-Q includes 7 appearance scales that measure aspects of appearance that are addressed by cleft-specific treatments including the face overall, lips, jaw, nose, nostrils, teeth and cleft lip scar.

FACIAL FUNCTION

The CLEFT-Q includes a speech scale that asks about problems with speaking such as having trouble with some words or sentences and having to speak slowly or to repeat oneself. The CLEFT-Q also includes a checklist to measure eating and drinking problems, such as having food get stuck in a hole in the mouth.

QUALITY OF LIFE

The CLEFT-Q includes 4 quality of life scales that measure psychological, social and school function. There is also a speech distress scale that measures feelings (e.g., embarrassment, frustration, being upset) associated with a speech problem.

CLEFT-Q FRAMEWORK

Our Team

Dr Anne Klassen

Dr Anne Klassen

McMaster University, Canada
Dr Karen Wong Riff

Dr Karen Wong Riff

Hospital for Sick Children, Canada

Questions?