CLEFT-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs.
The CLEFT-Q is for anyone with cleft lip and/or palate aged 8 to 29 years. The CLEFT-Q has an eating/drinking checklist and 12 scales that measure 3 overarching domains of Facial Appearance, Facial Function, and Quality of Life.
Advancing Knowledge &
Improving Health Outcomes
CLEFT-Q was field-tested with 2434 patients with cleft lip and/or palate at 30 hospitals in 12 countries.
Can be used in international clinical trials of craniofacial treatments.
Designed using a modern psychometric approach to facilitate use in patient care.
Basic Scale Structure
The CLEFT-Q is designed to provide clinicians and researchers with the ability to tailor their own version of the questionnaire to suit their needs. The CLEFT-Q measures 3 overarching domains: Appearance, Facial Function, and Quality of Life. The conceptual framework shown below was developed from qualitative interviews with 138 patients from 6 countries, 69 cognitive interviews, and careful examination of the research literature and engagement with 44 clinical experts. The CLEFT-Q was then field-tested in an international sample of 2434 patients in 12 countries.
The CLEFT-Q includes 7 appearance scales that measure aspects of appearance that are addressed by cleft-specific treatments including the face overall, lips, jaw, nose, nostrils, teeth and cleft lip scar.
The CLEFT-Q includes a speech scale that asks about problems with speaking such as having trouble with some words or sentences and having to speak slowly or to repeat oneself. The CLEFT-Q also includes a checklist to measure eating and drinking problems, such as having food get stuck in a hole in the mouth.
QUALITY OF LIFE
The CLEFT-Q includes 4 quality of life scales that measure psychological, social and school function. There is also a speech distress scale that measures feelings (e.g., embarrassment, frustration, being upset) associated with a speech problem.