FACE-Q | Skin Cancer

CONCEPT-DRIVEN APPROACH

FACE-Q Skin Cancer is a rigorously developed patient-reported outcome measure that can be used to measure outcomes for any type of facial skin cancer surgery. This FACE-Q module was developed from concept elicitation interviews with 15 patients with a range of different types of skin cancer. FACE-Q Skin Cancer was then field-tested in a USA study involving 209 patients.

MODULAR DESIGN

The conceptual framework for FACE-Q Skin Cancer covers 3 domains: appearance, health-related quality of life, and experience of care. Each domain is composed of 1 or 2 independently functioning scales. This FACE-Q module also includes 2 checklists that measure Sun Protective Behavior and Adverse Effects. The variety of scales/checklists provides flexibility to choose the subset best suited to measure the outcomes of interest in any given study or clinical situation.

Advancing Knowledge &
Improving Health Outcomes

RESEARCH

Can be used in research studies and clinical trials to study different approaches to treatments.

INDUSTRY

Carefully designed to meet the requirements of regulatory bodies.

BENCHMARKING

Used to benchmark outcomes in quality improvement initiatives.

PATIENT CARE

Used in clinical practice at a growing number of hospitals to measure outcomes from patients’ perspective.

SCALE STRUCTURE

The FACE-Q Skin Cancer includes 5 independently functioning scales and 2 checklists that measure outcomes important to patients from their perspective. Clinicians and researchers are able to administer the subset of scales relevant to their situation.

FACIAL APPEARANCE

Two scales measure appearance. One measures satisfaction with how the face looks (e.g., shape, contour, symmetry, looks up close). The second scale measures how bothered someone is by facial scars (e.g., color, width, length, location how noticeable).

QUALITY OF LIFE

Two scales measure quality of life. The first measures appearance-related distress (e.g., feeling self-conscious, unhappy and embarrassed about appearance). The second measures cancer worry (e.g., skin cancer might spread, become more serious, result in death).

EXPERIENCE OF CARE

The FACE-Q Skin Cancer module has a scale that measures satisfaction with information provided about appearance and skin cancer scars and how these would change and heal over time.

CHECKLISTS

This module includes 2 checklists that measure sun behavior (e.g., wore sunscreen, stayed in shady areas) and adverse effects following skin cancer treatment (e.g., pain, numbness, tingling, swelling).